During my postdoctoral fellowship (2010), I conducted a qualitative study on the experience of reconstructive treatments from the perspective of people who suffer from facial lipoatrophy. Facial lipoatrophy (loss of fat tissue) has been described as the most distressing and stigmatizing expression of the lipodystrophy syndrome, a syndrome that is caused by antiretroviral combination therapy. Reconstructive treatments can be used to restore facial contours and facial fullness. However, few people can access these treatments in Canada because they are not covered. The results of this study have been presented in the International Journal of Nursing Studies and Remaides (French magazine for people living with HIV). The results were also used to develop a practical guide for HIV nurses and a comprehensive report on the coverage of reconstructive treatments which was submitted to the Quebec Minister of Health and Social Services – and subsequently led to a meeting with the Minister.
Article in IJNS : http://www.ncbi.nlm.nih.gov/pubmed/22130507
Practical Guide for Nurses: http://www.canac.org/Resources/Guide_Lipo_EN_v4.pdf